When I started writing this, I had just broken down crying. It happens sometimes. I’m constantly fighting, every day, for everything – insurance companies, doctors, etc. I feel like I handle it all pretty well, and I don’t have many moments like these, but sometimes the frustration becomes too much…
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Traveling with a chronic illness can be difficult, but it’s definitely possible to travel and have a great time! Read on to see how I’ve made road trips work despite my challenging medical situation – travel tips at the bottom. I was fortunate enough to go on two fun road…
Comments closedThe Atlantic LIVE, a division of The Atlantic magazine that puts on events all year on healthcare, culture, technology, education, and more, put on PULSE – On The Front Lines of Health Care on June 13th in Boston. I was very excited when I first heard about it because it…
Comments closedI admire Senator Elizabeth Warren for many reasons, and when I decided I should talk to her about how the opioid issue I was hoping I’d get to meet with her personally, but I knew it was a long shot. I was excited to be able to meet with anyone…
Comments closedGiving my testimony in support of Massachusetts House Bill 3714 (to create a Rare Disease Council) was one of my favorite things that I’ve done so far. With a few other people, I got to read my story in front of the Joint Committee on Public Health and the over…
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